Ppi In Designing Delivering And Disseminating Cos Studies What Does It Look Like – An Animation

This video is part of the COMET Initiative. If used for research purposes, please cite as: Barrington HJ, Gorst SL, Horobin A, Morris C, Morris D, Smith M, Turner J, Williamson PR, Young B. Patient and public involvement in designing, delivering and disseminating core outcome set (COS) studies, what does it look like? – An animation. 2022. DOI: 10.17638/datacat.liverpool.ac.uk/1640

Patients and the public can help to design, deliver and disseminate ‘core outcome set’ studies (see below), this brief video explains what involving patients in such studies might look like. The video is designed for patients and the public who want to know more about being involved in core outcome set studies and/or can be used by researchers looking to involve patients as research partners in their work.

What is a core outcome set study?

At the moment, different research studies looking at the same treatments for the same condition often measure different outcomes. When such studies are completed, we cannot compare or combine their results because they have used different outcomes. Research needs to be tidied up in order to help reduce waste in research. The outcomes used in research may also not be relevant to patients. So, what’s the solution? Well, if all studies in a particular health condition included the same outcomes, they could all be compared and combined – we call this a ‘core outcome set’.
Core outcome set studies bring all key stakeholders together ( including patients) to agree on which outcomes are crucial to measure in research studies for a particular condition. Consensus methods like surveys and meetings are used to come to an agreement. Involving patients in designing and delivering these studies helps to make sure the study is accessible and appropriate way for patients to take part in. Our video tells the story of Dev, a patient research partner and Lei, a researcher leading the study, who worked together to design a core outcome set study that is accessible to patients.

This video has been developed by the COMET (Core Outcome Measures in Effectiveness Trials) Initiative which brings together people interested in developing and using core outcome sets.

Author

Ariyani

Como educador, estou profundamente engajado no desenvolvimento dos estudantes em ambiente escolar, adotando métodos pedagógicos que valorizam conexões genuínas e são movidos por inovação e fervor. É minha vocação guiar os alunos na jornada de se tornarem uma geração notável, empregando estratégias de ensino amplamente aclamadas por prestigiadas instituições acadêmicas ao redor do globo - events.zulekhahospitals.com